Pegson In The Present . Com

Living in the Present…Aware of the Future…

First Day Back at Home

FirstDay back at home after 2 weeks in the hole.

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PeGsOn

pegson1986@hotmail.com

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November 16, 2009 Posted by | All Posts | , , , , , | 2 Comments

Hospital Stay Day 9 – Video Blog

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PeGsOn

pegson1986@hotmail.com / twitter.com/pegson

November 10, 2009 Posted by | All Posts, Hospital Stays | , , , , , , , | Leave a comment

Hospital Stay Day 8 – Off the Maxillofacial team, funny coversation, lung update

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BRAND NAME: ULTRA PAINFUL STING WASH

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Ok so first off let me start by saying I’m still in hospital and probably will be for sometime to come, however Today I’m official off the maxillofacial service…

What does this mean?

Well My wisdom teeth surgery is healing nicely and that there is no need for me to be under there service in the hospital..so basically if there wasn’t CF factor I would be sent home tomorrow morning…

So I still have to continue with my Oral mouthwashes that sting like hell, and I’m still not allowed to eat anything that will get stuck in my teeth because that could facilitate infection along with nothing RAW although I’m not one who likes a still galloping and mooing T-Bone..

Something on the funny side and a little X rated so readers beware..One of the registrars who came to discharge me from their service started to list the things I can and can’t do and for how long..I warn you, you won’t believe me but anyhow He said this to me.

DOC: So are you married Arron?

ME: Hahahaha nah I’m not

DOC: Do you have a Girlfriend?

ME: Uhmm no not at the moment, not for a while, been going through an ultra dry patch something close to the Gobi desert (In a joking tone)

DOC: Well are you sexually active?

ME: Lol what?

DOC: Ok so while your teeth are healing your mouth is going to be very susceptible to infections especially from things alien to the mouth.

ME: Alien…….ok (thinks whats my doctor smoking)

DOC: I guess what I’m saying is don’t kiss and refrain from sexual interactions of the Oral kind until you can chew your food with no pain (He is dead serious no grin to ease the akward moment, but I guess being able to chew with no pain means your mouth is healed)

ME: oh…k….so yeah that shouldn’t be a problem..uhmmmm.

DOC: Ok Arron everything seems good, might pop my head in through the week if your here.

ME’ Rightio cya mate.

So yeah I guess it makes sense not go around having oral sex with strange women straight after wisdom teeth surgery, but I thought to myself who does this doctor think I am some kind of sex freak that is so addicted to sex I’m forced to escape the ward and struggle into town with my gown flapping half done up in the breeze for a beer hoping to impress the ladies with the size of my IV Pole…All in order to go nom nom nom nom…pretty funny, well least I thought so…

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PuffinMuffin

On to my Face, its still swollen but no where near the extent as 2 days ago its almost back to normal in that department…The pain has taken on a new wrap with the pain changing from a sharp constant shooting pain to now a dull ache. However still quite painful. I’m currently taking codeine phosphate to ease the pain..It works but not like Panadole..My Skin is looking really battered now the swelling has gone down…When my face was swollen It was like you could see no imperfections, not even little scars because my face was so red and puffy…Now when I look in the mirror I can see bruises starting to form showing what looks like the out line of some kind of facebrace to keep your mouth open during surgery, Tiny little blood blisters where the bruising is more towards the surface rather than deep, A ton of yellow brusing but it can’t be seen in all light, and quite a few pimples & Zits from not being able to properly bath my face for 4 days…So I need some sun and vitamin E cream.

I will just quickly update you on the lungs..

They are still very blocked up with mucus although now my tooth/mouth pain is starting to come under control I am starting to find it a tad easier to clear the mucus…My O2 sats are still not back to where they were 96%, currently my O2 is  sitting at around 93% on room air. As for treatment I’m doing Tobramycin and Ceftazadime via IV and Ciprofloxacin orally..Along with all my over daily meds.

As for how long I will be in here? It”s hard to say considering we are now dealing with a chest infection.  In all Probability two weeks maybe if I’m lucky and responding well 1 week than home on the meds for the final week…so It’s a play by ear situation at the moment….

As for now I’m going to get some sleep.

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PeGsOn

Pegson1986@hotmail.com / twitter.com/pegson

November 9, 2009 Posted by | All Posts, Hospital Stays | , , , , , , , , , | 8 Comments

Hospital stay Day 5 – Pain Pain and More Pain


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pegson1986@hotmail.com

November 6, 2009 Posted by | All Posts, Hospital Stays | , , , | 6 Comments

Video – 30 Minutes after Recovery. Graphic

Note: Just a little warning this video is a slightly graphic. Swollen Face, close up of bloody mouth and blood specks over me…not bad at al..I was drugged out of my mind but I thought I would show real footage even if I embarrass myself. At this stage I felt great compared to what I feel now. I’m in Extreme pain because the Surgery Medication has worn off and my mouth is oozing blood.

Sorry took so long be out of it and still am this has been spell check 3 times lol

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PeGsOn

pegson1986@hotmail.com

November 6, 2009 Posted by | All Posts, Hospital Stays | , , , , | 1 Comment

Hospital Day 4 – The Night Before Surgery. Final hurdle in way of Transplant Listing

Hospital Day 4 – The Night Before Surgery.

So tomorrow is the big day when I have the teeth out which is the final hurdle in my way before I can go on the active waiting for Transplant list (as I know).

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pegson2986@hotmail.com

November 5, 2009 Posted by | All Posts, Hospital Stays | , , , , , , , , , , , , , | 3 Comments

Reasons for my Hospital Admission Explained in Greater Detail

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ME in Hospital

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I have had quite a few people ask me why such a long hospital admission for a simple wisdom tooth extraction so I thought I would go into some detail to explain the full story.

Ok so its morning 4 of my combined chest tune up which is not going great guns but that’s not unusual for me as I don’t often prosper in hospital and my wisdom teeth extraction which is down to happen in less than 30 hours.,

In Quick..The reason for the Wisdom teeth extraction is not that they are bothering me, because their not. However the removal is due to needing to go on the  Active  Transplant list. The protocol put in place in Australia to go on the active transplant list means that all wisdom teeth yet to settle into place must be removed as a set of impacted wisdom teeth  after transplant is just an infection waiting to happen, considering your highly immuno suppressed.

So if you have read any of my blogs over the last 3 months you would have noticed I have mentioned this admission quite often as it was a planned thing as to get a surgeon who was willing to operate in a public hospital due to my CF doctors being all located at a Public Hospital …Not hard to find but it meant waiting quite a while on the waiting list which I was actually placed on as high priority..

So it was organised with both my CF team and my Oral Surgeon team for me to come in a few days in advance so to build my lungs up a bit which should hopefully make the surgery go a little smoother, in theory.

Now everyone seems to be under the impression I’m just having four teeth plucked out, well I’m not..

My wisdom teeth are physically not bothering me at all, only the top two have slightly started coming through the gum and that’s only to the point where a millimetre or so is visible. While the bottom two are 2 cm’s  deep in the jaw bone when viewed on x-ray, so quite a distance from even reaching the gum.

So what makes this surgery so difficult? A Few things actually. Number 1. My lungs at best are 48 percent so given I have sat around hospital I would say 45 percent at the moment is a fairer assumption..

I suffer frequent haemoptysis which means another aspect that has to be closely monitored in surgery.

I have moderate and progressing liver disease, which has so far caused slight Portal Hypertension and Esophageal Varices, while these at this stage seem to be under control they are an extra variable that play a part in surgery. Especially wisdom teeth surgery since bleeding is quite abundant in any oral procedure and combine that with having a dodgy liver and poor clotting factors and low platelet levels its quite important that all precautions be taken…

The final issue of the surgery is how close my top wisdom teeth are to my sinus, roughly 3 Millimetres away which means in all likely hood a small hole between sinus and mouth could be created when the wisdom teeth are pulled, which while not unusual means a whole new complication that needs to addressed…

There is also the matter of me CF related treatments that I do day to day. That consists of nebulised solutions,  most delivered by mouth pieces not simply masks. Those being Nebulised Tobramycin or Colliston along with Pulmozyme..

Now having oral surgery and having my jaw bone dug into , Its highly likely I’m not going to be up to having a plastic mouth piece in my gob sucking away on tobi, so that is also another reason I have been admitted and will likely stay a few days to a week after surgery so that all my medication can be done via IV.

Pain meds…Well they don’t like giving me Panadole (Tylanole) to begin with for liver reasons at least in high doses and we all know how bad morphine can be for someone with lung issues. While its great for relieving pain its also suppresses the lungs and makes it quite difficult to get rid of any secretions…

So these are all reason while I am in hospital., While in here I’m also looking at getting a few things addressed. One of them being the constant nose bleeds from my right nostril I have been suffering after any coughing attack which all come to the forefront after a terrible head cold about 2 months ago that was so concentrated in my nose and throat I have only in the past two weeks started to get a somewhat normal sounding voice back…

I also have numerous x-rays, bloods, and swab test I believe that can all be fast tracked while in hospital which are just some of the smaller tests I have requests slips for…it becomes quite overwhelming so using a hospital admission to get these little things out of the way is smart because you usually go to the head of the line as IN PATIENT as compared to an OUT PATIENT..

Overall the goal of all this effort is to finally be able to go back down to Sydney RPA (Liver TX)  and ST Vincent (LUNG TX) Hospital having fully completed transplant work up. Its been quite a road this Transplant work up.

I have been on the Transplant Work up road now for probably close to 18 months. I have been asked by some people if I’m committed because its taking so long, which I reply of Cause I am. I believe one of the reasons its taking so long is because I have to deal with two hospitals. They are both 180 km’s away, plus it hasn’t been overly urgent and I have been able to take my time in making my decisions, that being said I have been waiting for the wisdom teeth to come out for 4 months now so that was really out of my control..

As for general Transplant protocol here in Australia, Usually one is listed if they pass the criteria once that continually sit at around 30%FEV1 or lower. As of two weeks ago I had worked myself up to 48% from 42% 8 months ago. That being said and taking into consideration that I also suffer from liver disease my doctors have said I might ought to consider a threshold of 35% FEV1 as my listing point just to give myself an extra chance…

But at this point unless I get hit by a health complication out of nowhere, I still have a little time before being fully listed becomes a rushed situation, and this further reaffirms why we are taking so much care with the Wisdom teeth extraction as a rapid out of control Exacerbation at this stage of my health could greatly increase my chance of having to be listed much sooner rather than later.

As for right now I’m waiting for my Temazepam to kick in so I can get some much needed sleep while hoping this itch in my throat I have had for the past few days stays only at an itch  level and not develops into something more sinister  as like in the past I have always responded poorly to hospital IV’s mainly because I always seem to catch something from the extra abundance of people I come into contact with as compared to a full-on home nebulised treatment….

But any way my Temazepam is starting to workfffsgvrsfKknbfijn…….ZzZzZzZzZzZZz ZzZzZzZzZZzZzZzZ zZzZZzZzZzZ zZzZZzZz ZzZzZzZ

Further Reading

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Pegson1986@hotmail.com

November 4, 2009 Posted by | Uncategorized | , , , , , , , , , , , , , , , , | 5 Comments

PeGsOn’s Cystic Fibrosis Blog – Cystic Fibrosis Blog wednesday 9th September.2009 – Transplant listing,wisdom teeth extraction and dvd purchases

Ok So here Is my video blog for today…Watch an Enjoy…..


PeGsOn
pegson1986@hotmail.com

If you are able please retweet my posts so more people can experience my AwEsOmEnEsS

September 9, 2009 Posted by | All Posts, Daily Rants, Media Posts | , , , , , , , , , , , | Leave a comment

Pegson’s Blog Thursday 13.09.09 – Wisdom teeth really are a B#tch

Waiting waiting waiting

Waiting waiting waiting

Just a quick update for today..

I had an appointment to see the surgeon who will be removing by wisdom teeth…however that appointment never eventuated since he got stuck in surgery.

Although I do have a plan of attack on how I want my wisdom teeth situation dealt with..So here it is…I warn ya it may be a tedious read. J

So my wisdom teeth are the major thing holding me up from being actively listed on the transplant list for a lung/liver transplant.

All four of my wisdom teeth need to be removed as if left unattended they would become a future source of infection which would be disastrous while trying to recover from a transplant since your on immune suppressants..

Now here’s the thing….I’m not so much worried about having the teeth pulled out or the horrendous pain that it’s going to dish out to me for a couple of weeks however I’m really concerned about how the Cystic Fibrosis side of things will cope since I have a few mates who have had their wisdom teeth removed and general consensus is that a chest infection flare up occurs due to lack of coughing, physio and ability to eat correctly for a week or two…

So my plan that I have discussed with My CF team is to go into hospital under my respiratory Doctors (Wark and Twaddle) have a few days of IV antibiotics as a buffer… have the wisdom teeth removed followed by a week or so of IV Antibiotics to try and fend off any chest infection flare ups.

I also have the bonus issues of my liver disease which causes a lack of clotting ability and since teeth are heavy bleeders even in healthy people it could be an even bigger issue in someone with a liver condition…so the safest place for me to be is in hospital….

Ok so my plans sounds great…doesn’t it…ok well there is one flaw that we are ironing out as we speak…In Australia we have private and public hospitals…Now my Cystic Fibrosis is taken care of by the public system…now while you can have your teeth done through the public system its usually about an 18 month wait so most people with private health insurance go through the private system which is great if your healthy and can be in and out in a day or two but like I discussed earlier in the post that’s not plausible for me..

Ok so my dental surgeon is under the private system and my Cystic Fibrosis side is under the public so I have the added pleasure of organising to have these two systems join together…..Well it’s getting there but its been a laborious process but since I don’t have 18 months to sit around waiting on the public system its something that has to be worked out.

So I’m hoping that within the next month or two I can get this all done and finally be listed on the Transplant active list.

So yeah I feel better now getting that out..I probably wasn’t that informative but that was my day and I have written it in a confused and flustered state of mind.

Tomorrow I’m off to my Aunty Maureen’s funeral. Her death has hit me hard not only because I had a real connection with her but it hit me even harder since she died of lung disease and I got to see first hand of what my future likely has install for me…It’s something I may go into later on once I can get my mind around it.

Thanks for reading Guys..please enjoy this 15 second clip of me pretending my hand was a RAM (male sheep) while I waited for the doctor who never came..:)

PeGsOn
pegson1986@hotmail.com

p.s. I really enjoy your comments and emails even. I like good friendly debates and discussions…and please if you think I’m wrong kindly call me on it…because If I am wrong I may not know about it and by being informed it could help me out…So yeah comment me people. and can you retweet this blog and spread the word I would really appreciate it..thanks again.

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August 13, 2009 Posted by | All Posts, Clinic Visits, Daily Rants, Media Posts | , , , , , , , , , , , , , , , | 3 Comments