Hospital Stay Day 12 – Sleep, Hartman’s Solution, Chesty, Out and About, Going Home?

Hey Guys..

Pegonator

So I thought I would do a quick Hospital Stay Day 12 Update since I haven’t been able to or had the time to get round to making a Video Blog to cover the Day, which in the most part has been uneventful.

So today has been a bit difficult and I have not improved so much over the last 24 compared to the previous few days…

My main issue that finally caught up with me today was lack of sleep….severe lack of sleep.12 Days and an average of 3 hours asleep is not enough for me not even close.. While healthy I need a good regular 10 hours of sleep so when crook I need around 12..

I was that tired I was delirious. I even started feeling short of breath and like I was drugged on 50 Temazepam.. So I tried sleeping few the day but was being constantly woken up due to normal hospital activities. I did skip going to the gym and my morning physio which is not so great but I couldn’t keep my eyes open let alone do a gym session..

I really think hospitals need to reassess patient care…there are 4 things we cant survive without: Oxygen, Water, Food and sleep and the Hospital has the first 3 down but constantly fail with allowing us patients to get adequate sleep.

When I think about it I could survive a month without meds I was be brutality ill but I would Survive but a month without sleep my brain would be fried and in other terms 6 Feet under…mmmmmm great TV series

The perfect example of this is in my treatment schedule that has been worked out this admission where 6 out of 9 daily drug doses are in prime sleeping time of 8pm to 8am…meaning at best I get broken sleep when most of you all would be sound asleep getting big solid chunks of precious delicious sleep.

Also for some bloody unknown reason a random registrar who was doing the re charts for my ward decided to chart me for a bag of Hartman’s solution instead of normal saline.. The Hartman’s solution has few extra additives and what not. That’s not the problem the problem is some drugs are not compatible with the Hartman’s Solution and than the some that are compatible are not known to the nurses or in the drug books has unknown so to be safe they piggyback my line….So When it comes time for a treatment, they stop the Hartman’s solution…Flush the line with saline than place another line onto the first line with the treatment running through saline…Once the treatment is through I’m reverted back to the Hartman’s solution..

All this chopping and changing makes it impossible to sleep during an already difficult treatment schedule…

And before you say maybe I needed it, well of course if I needed it I wouldn’t be complaining but when one of the Doctors under my specialist popped her head I asked her about it and she had no idea and said I didn’t need it and re charted the usual run of the mil saline..

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As for my Wisdom teeth surgery. The stitches have all come out and there is tons of loose flesh. I have been able to eat more normal foods, even getting some KFC popcorn chicken down and a Frozen coke for lunch and a Micro-waved Chicken and Potato meal the tea.

Also The pain has really subsided. It still hits hard and will become just as painful but its been happening less frequently over the last 24 hours, which has been seen my by pain meds consumption, down to 3 pain killers compared to 7 the 24 hours before..Mmmmm Endone sandwich….Codeine Milkshake …Om nom nom nom nom.

Lung wise I’m a bit chesty, but I prefer that since it means I can at the very least clear the mucus whereas before I was so tight I couldn’t get anything up…I still coughed up a few pieces of mucus that contained blood. While this is not abnormal for me over last 5 years, its abnormal for me over the last 3 months where I have had no bleeds. So its something I have to be cautious of because my Bleeding goes like this..Gets infection – No Bleeds, Treats infection – No Bleeds, Feeling healthy goes does some fun stuff – Massive Bleed. Its like the infection does the damage but the Bleeding does not occur because while your sick and recovering from the infection your not that active so the damage is not exploited until your well when you go out to “play”…So that’s one reason why I want to hit the Hospital Gym a few more times before going home since If there is a little underlying possible Bleeding issue that has been caused I want to exploit the problem while in hospital not when I get home…

Speaking of going home it is still looking like Monday arvo or early Tuesday morning. Well as long as I keep improving and don’t have any set backs..

However the program I talked about in last night’s Video Blog called “out and about“…Well they don’t have a place on their program for another 2 weeks so It looks like I will have to go the IV’s at home alone…Which I’m ok with. I did it for ages between 14 and 18 but since than I have resounded well to nebs at home so haven’t ventured down the home IV road for nearly 5 years.

So not being on the ’out and about” programs means I won’t have an IV machine which the “out and about team” call a Cad Pump to feed Ceftazadime through, which means I have to gravity feed the IV’s and be constantly on alert to stop the Ceftazadime running through and than feeling me full of air…or the other option which saves cost of having a full line set up is to push the drug over half an hour…

I also Have to be careful with the hep saline locks of my Port. As you guys know who have Port-O-Cath’s you have to close your Port properly usually with a saline flush, followed by a hep saline lock….So considering I have a treatment at home every 8 hours It will mean I’m going to need to hep saline lock the Port line 3 times. Now the issue is hep saline is a blood thinner and I have blood count issues which gave me huge grief during surgery and they won‘t even let me have ibuprofen or aspirin…So considering Hep Saline is much more potent and works directly on the blood to thin it out, means that it’s something me and the team are still working on..If you have any ideas send em to me..my port is 6 years old so it does need some care…

Any way its 4 am now I’m gonna try and go back to bed, So far I have slept 7 hours from 6pm to 1am…Got up due to missing tea had a bite to eat, watched a bit of the TV show the Mentalist, Busted a few zits, perved on the eating disorder girls across the corridor. Mmmmmm ribcage and exposed pelvic bone. So now I thinks it’s a good time to have an Endone since the pain is just beginning to flare up and I don’t want to wake up mid morning and be in excorticating pain since that means I won’t be productive for physio…

So good night and please leave me some comments people…I love the comments I get but I reckon I’m the least commented CF’er blog in history…is that saying something about the quality of my writing skills. Poor No Comments PeGsOn lMAO…

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VERY IMPORTANT QUESTION

Oh and here is a question its very important…
Next Saturday so 7 days away. I have been invited to a 21st fancy dress party…The theme is TV, Movie’s or Musical Characters. Now also take into account I will have my port accessed which is upper right chest near collar bone. So I don’t want that to be visible, also its just before summer and regularly 95 Fahrenheit or 35 Celsius so It needs to be cool but with coverage for my Port and body not going naked like an Egyptian-…So I need costume Suggestions, Also don’t limit your suggestions to single characters as I can go as a Duo since I have a mate who is keen to do a Duo if we get a good enough idea. I have a week to put it together, money is not an issue….

Pegonator

Thanks Guys and Girls…Luv ya’s

PeGsOn

pegson1986@hotmail.com

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Quick Update Morning Day 4 of the Suspected Fosamax incident

Still wishing I was asleep

Well I have just woken up and the horrific pains have seemed to dramatically retreated..I can actually move around with the need of a 4 therapeutical Endone.

While I am feeling better on the pains and aches front my chest has sustained some collateral damage and Its going to require me sticking my regimen 150 percent If i’m going to try and avoid a hospital stay.

Luckily my appetite was not affected during this incident as weightloss would of been a real kick i the teeth. I got up and cook myself eggs this morning which is a good sign and I was able to walk up this flight of stairs we have that I use as a co ntrol each morning to gauge how my chest is, as when Im really crook Its darn right near impossible, However today while I was puffed I was recovered with 10 seconds of reaching the top which when taken into consideration how unwell I have been the last 4 days and how phyiso and treatments have simply not been able to be done 100 percent its not to bad an outcome.

Its friday morning which means its two days since I did the sputum culture after I came in contact with a fellow cf’er who has Cepacia..So I will be ringing the hospital to see if there are any results back as I don’t know if I can go another two days over the weekend with this ravaging my thoughts..

So for the rest of the day Im gonna take it easy and relax in the sun and hopefully tomorrow I will be back to 100 percent.

PeGsOn

pegson1986@hotmail.com

The Vlogger has a Question – I can’t sleep what do you do?

I can barely sleep at the best of times but when I’m doing any sort of treatment my routine seems to become more and more out of whack for each passing day…

So my question is what do you guys do? what are your little tricks into help one getting better and more sleep???

Oh and the thing and off my face is a bandaid I put on a scratch from pruning the palm tree around the pool…I completely forgot it was on and as you can see in the footage falling off..(I’m classy)