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Hospital Stay Day 12 – Sleep, Hartman’s Solution, Chesty, Out and About, Going Home?

Hey Guys..

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Pegonator

So I thought I would do a quick Hospital Stay Day 12 Update since I haven’t been able to or had the time to get round to making a Video Blog to cover the Day, which in the most part has been uneventful.

So today has been a bit difficult and I have not improved so much over the last 24 compared to the previous few days…

My main issue that finally caught up with me today was lack of sleep….severe lack of sleep.12 Days and an average of 3 hours asleep is not enough for me not even close.. While healthy I need a good regular 10 hours of sleep so when crook I need around 12..

I was that tired I was delirious. I even started feeling short of breath and like I was drugged on 50 Temazepam.. So I tried sleeping few the day but was being constantly woken up due to normal hospital activities. I did skip going to the gym and my morning physio which is not so great but I couldn’t keep my eyes open let alone do a gym session..

I really think hospitals need to reassess patient care…there are 4 things we cant survive without: Oxygen, Water, Food and sleep and the Hospital has the first 3 down but constantly fail with allowing us patients to get adequate sleep.

When I think about it I could survive a month without meds I was be brutality ill but I would Survive but a month without sleep my brain would be fried and in other terms 6 Feet under…mmmmmm great TV series

The perfect example of this is in my treatment schedule that has been worked out this admission where 6 out of 9 daily drug doses are in prime sleeping time of 8pm to 8am…meaning at best I get broken sleep when most of you all would be sound asleep getting big solid chunks of precious delicious sleep.

Also for some bloody unknown reason a random registrar who was doing the re charts for my ward decided to chart me for a bag of Hartman’s solution instead of normal saline.. The Hartman’s solution has few extra additives and what not. That’s not the problem the problem is some drugs are not compatible with the Hartman’s Solution and than the some that are compatible are not known to the nurses or in the drug books has unknown so to be safe they piggyback my line….So When it comes time for a treatment, they stop the Hartman’s solution…Flush the line with saline than place another line onto the first line with the treatment running through saline…Once the treatment is through I’m reverted back to the Hartman’s solution..

All this chopping and changing makes it impossible to sleep during an already difficult treatment schedule…

And before you say maybe I needed it, well of course if I needed it I wouldn’t be complaining but when one of the Doctors under my specialist popped her head I asked her about it and she had no idea and said I didn’t need it and re charted the usual run of the mil saline..

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As for my Wisdom teeth surgery. The stitches have all come out and there is tons of loose flesh. I have been able to eat more normal foods, even getting some KFC popcorn chicken down and a Frozen coke for lunch and a Micro-waved Chicken and Potato meal the tea.

Also The pain has really subsided. It still hits hard and will become just as painful but its been happening less frequently over the last 24 hours, which has been seen my by pain meds consumption, down to 3 pain killers compared to 7 the 24 hours before..Mmmmm Endone sandwich….Codeine Milkshake …Om nom nom nom nom.

Lung wise I’m a bit chesty, but I prefer that since it means I can at the very least clear the mucus whereas before I was so tight I couldn’t get anything up…I still coughed up a few pieces of mucus that contained blood. While this is not abnormal for me over last 5 years, its abnormal for me over the last 3 months where I have had no bleeds. So its something I have to be cautious of because my Bleeding goes like this..Gets infection – No Bleeds, Treats infection – No Bleeds, Feeling healthy goes does some fun stuff – Massive Bleed. Its like the infection does the damage but the Bleeding does not occur because while your sick and recovering from the infection your not that active so the damage is not exploited until your well when you go out to “play”…So that’s one reason why I want to hit the Hospital Gym a few more times before going home since If there is a little underlying possible Bleeding issue that has been caused I want to exploit the problem while in hospital not when I get home…

Speaking of going home it is still looking like Monday arvo or early Tuesday morning. Well as long as I keep improving and don’t have any set backs..

However the program I talked about in last night’s Video Blog called “out and about“…Well they don’t have a place on their program for another 2 weeks so It looks like I will have to go the IV’s at home alone…Which I’m ok with. I did it for ages between 14 and 18 but since than I have resounded well to nebs at home so haven’t ventured down the home IV road for nearly 5 years.

So not being on the ’out and about” programs means I won’t have an IV machine which the “out and about team” call a Cad Pump to feed Ceftazadime through, which means I have to gravity feed the IV’s and be constantly on alert to stop the Ceftazadime running through and than feeling me full of air…or the other option which saves cost of having a full line set up is to push the drug over half an hour…

I also Have to be careful with the hep saline locks of my Port. As you guys know who have Port-O-Cath’s you have to close your Port properly usually with a saline flush, followed by a hep saline lock….So considering I have a treatment at home every 8 hours It will mean I’m going to need to hep saline lock the Port line 3 times. Now the issue is hep saline is a blood thinner and I have blood count issues which gave me huge grief during surgery and they won‘t even let me have ibuprofen or aspirin…So considering Hep Saline is much more potent and works directly on the blood to thin it out, means that it’s something me and the team are still working on..If you have any ideas send em to me..my port is 6 years old so it does need some care…

Any way its 4 am now I’m gonna try and go back to bed, So far I have slept 7 hours from 6pm to 1am…Got up due to missing tea had a bite to eat, watched a bit of the TV show the Mentalist, Busted a few zits, perved on the eating disorder girls across the corridor. Mmmmmm ribcage and exposed pelvic bone. So now I thinks it’s a good time to have an Endone since the pain is just beginning to flare up and I don’t want to wake up mid morning and be in excorticating pain since that means I won’t be productive for physio…

So good night and please leave me some comments people…I love the comments I get but I reckon I’m the least commented CF’er blog in history…is that saying something about the quality of my writing skills. Poor No Comments PeGsOn lMAO…

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VERY IMPORTANT QUESTION

Oh and here is a question its very important…
Next Saturday so 7 days away. I have been invited to a 21st fancy dress party…The theme is TV, Movie’s or Musical Characters. Now also take into account I will have my port accessed which is upper right chest near collar bone. So I don’t want that to be visible, also its just before summer and regularly 95 Fahrenheit or 35 Celsius so It needs to be cool but with coverage for my Port and body not going naked like an Egyptian-…So I need costume Suggestions, Also don’t limit your suggestions to single characters as I can go as a Duo since I have a mate who is keen to do a Duo if we get a good enough idea. I have a week to put it together, money is not an issue….



Thanks Guys and Girls…Luv ya’s

PeGsOn

pegson1986@hotmail.com

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November 13, 2009 Posted by | All Posts, Hospital Stays | , , , , , | 13 Comments

What Dat: Guess What Today’s Lunch is? the taste made me spew

SUBMIT YOUR GUESS CLICK HERE PLEASEPIC_0374

What is this meal....Looks ok but it made me gag than hurl

ANSWER – in 24 hours time…

SUBMIT YOUR GUESS CLICK HERE PLEASE

PeGsOn

pegson1986@homail.com / twitter.com/pegson / facebook.com/arronpegg / youtube.com/pegson123

November 12, 2009 Posted by | All Posts, Hospital Stays, What dat? | , , , , , , | 2 Comments

Hospital stay Day 10 – How am I tracking?

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November 11, 2009 Posted by | All Posts, Hospital Stays | , , , , , , , | 3 Comments

14 things I Hate/Love about a Hospital Admission….

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Front of JHH Hospital

Note:Ok so I got this idea from TatteredBookWorms blog, where she wrote about the top 1o things she liked about Hospital Admissions in order to give a positive spin to a bad situation. I thought that considering I’m currently in hospital and during this admission I have already experienced the good, the bad and the ugly all in just 10 days…So I thought I would write What I Love and What I hate about hospital but with my more morbid PeGsOn trait you guys have come to know…and beg for more…


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Nurse Rachet

1.Ignorant/arrogant/obnoxious/small minded Nurses and Doctors – There is nothing worse than being sick in hospital and having that one nurse or doctor  that is a complete twat. Constantly treating you like your some kind of baby. Constantly repeating you should be use to this (being in hospital, having bloods taken etc)… what They need to understand is while we may have had a tone of hospital admissions it doesn’t mean we are use to having a Cannula dodged up or putting up with shocking pain.. They also need to realise we have much experience and generally we take a proactive role in our healthcare and when we say “this dressing isn’t right” or “I can’t breath” or “this is making me sick” you need to listen and not get into that defensive mode because you’re the so called health care professional and I’m the dumb patient. Because in all likely hood most CF’ers are more competent with their heath than most trained professionals. And for that reason this is on my most hated things in Hospital.

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2.Hospital Food- We all know how Much I hate hospital Food from the posts oduring hospital admission. It taste worse than an out of date  microwave’d sushi dinner. It smells rank, and it even sweats….is it alive???. Worst of all is when your plate slides into the centre of the serving tray and you get a half hot and half cold smelly sweaty mystery meat dish that could put even the most fearsome competitors out of action.

3.Water Jug Ladies – I absolutely loathe the concept of the “Water Jug lady”…The Water Jug lady is usually a middle aged still living with their mother woman who has the energy on of a 20 year and collects Sweaters. The “Water Jug Lady” comes in every morning at around 6 am and she won’t quietly sneak into your room trying not to wake you… She will charge in with all Jugs Blazing… flicking the lights on, reefing back the curtain….Making you jump up startled like your about to be the victim of a vicious skinhead gang rape…The ‘Water Jug Lady’ than in an over cheerful singing voice almost proud of her job to be delivering this seedy Jug of Water makes the announcement ‘I’m Here with your fresh tasty Water Jug“….which you reply in a still half asleep voice ” I don’t want one damn it…I want to sleep” . At this point her face drops and she looks like you just stole her favourite Sweater and gave it to St Vinnies!!!

4,Evil Blood collectors –

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Ouchy

You get some great ones but than you get some god damn demon worshipping blood sucking pardon the pun ugly arse Blood Collectors. They strut in with their little trolleys of torture tools waving the biggest bloody needle they can find because they are more worried about making their job easier rather than using a small needle to make it less painful for you. After 20 previous draws  from your one good vein. Your left bruised and sore and feeling like an abused wife on Oprah. You than try to make small talk hoping to find some empathy through that thick viscous layer of leather skin but all you get is the evil eye that makes you veins constrict in freight…The blood collector than lines your vein up and thrusts the needle in, like its some quick hook up behind a pub…You feel a horrendous pain in your arm and let fly a few abusive words mid air as the needle passes straight through the vein and into the outer tissue of the arm wall. The Evil demon worshipping blood collector screams out in some foreign ancient tongued language proceeding to lay the blame on you for you’re your arm supposedly twitching and that your vein moves around to much under your skin…..“I’m so sorry demon lady please don’t hurt me”..

5.Nebs– I hate doing nebs in hospital….Give me IV any time because Nebs I can do at home and while in hospital it means a whole lot of cleaning for me to do because I never trust that the nurses are going to clean the mouthpieces and unit and I constantly worry that when it goes off to their secret nurse cave to be sterilised you may have returned someone else’s infected chewed up Antibiotic resistant mouthpiece..

6.Exercise Bike for your room – Your Physio is on your case and your not quite up to going to the gym.. Because your still off colour so the physio drags up this old 1982 model workhorse of an exercise bike that looks more like a mini tractor than an exercise bike. Instead of a nice winding knob to change the pedal resistance it has a series of straps and harnesses that must be tightened…making it resemble a device on the Saw films more so than an exercise bike…Now The real thing I hate is as you pedal the bike it slowly vibrates forward so after ten minutes your half way out the door with your gown flapping.

7. Midnight Drugs – This is terrible, and is probably the thing I hate most about Hospital. When your charted to have Drugs at midnight or early morning so they can get a good Drug Dose reading in the morning for Blood collection..Your sound asleep after just popping a few dozen Temazepam and than your woken to a nurse administering a shot of Ceftaz..than you get to sleep than the machine alarm…than the flush goes through and alarms again by this time your on the net surfing redtube.com and bombed out for the whole day with no ebergy due to lack of sleep..

COMMENT ON YOUR HATES AND LOVES OF HOSPITAL

What I Love about Hospital

1.Good Nurses – I love a good nurse, A nurse that will sit and have a good old Chit chat with you, walk down to get you some decent food from the canteen, go the extra mile just to help make you feel more at ease and Even allow you to have input into how you want your Port-O-Cath dressed. And most importantly when an issue arises they will react promptly get you the best possible care. Unlike the bad nurses that just yell abuse and strut around like royalty.

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Nap Time

2.Sleep – In Hospital I love being able to sleep in as long as I want without feeling guilty about wasting a day. I also love being able to nap whenever I feel the urge….And if I cant sleep I’m free to have as many Temazepam’s that my heart desires or can take..

3.Unlimited piping hot showers — This is a fav past time of the day for me while in hospital. And I love it… Being able to shower for great lengths of time is another huge tick for a hospital admission, there is nothing as good as relaxing under a piping hot shower after sucking on a tobra neb and thinking about Paris Hilton and all the endless possibilities all whilst keeping a firm grip on the lock so that the ‘Water Jug Lady’ doesn’t try to join you.

4.Meds Delivered – Having your meds delivered and never needing to worry about missing a dose is totally awesome, it makes being in hospital for a tune so much more bearable…and if your lucky the nurse that delivers the meds might be an alright looker.

5.Early Morning Exploring – I’m not allowed to leave my room through the day due to cross infection risks and the general amount of sick people in the hospital but If I set my alarm for around 4 am the nurses let me off the chain and ball to explore the hospital and all its nifty nooks and crannies.. The things you come across  like morgues, dirty surgical equipment, the mental ward that has to be guarded ….The best part is being able to ravage the freshly packed vending machine all in the name of finding the perfect tasting bottle of Coke.

First Aid - Aqium Gel

Antibacterial Hand Gel

6.Aqium Hand Gel –I love Aqium Antibacterial hand gel and use it everyday be it at home or in Hospital. It’s great stuff when your out and about and you need to give your hand a good clean, the stuff really helps avoid the unnecessary bugs. So when I’m in hospital I feel closer to home because I’m constantly able to use Aqium Hand Gel every few metres as Aqium hand gel is everywhere around the hospital. Its especially helpful when a patient with a gaping oozing wound of severe multi resistant Golden Staph brushes against you in the lobby. But because I have my hand get I’m like dat ok I will just Hand Gel the Area.

7.Temazepam I love how I get Temazepam by the bucket load in hospital, It really is something I truly enjoy about Hospital…Nothing like peacefully drifting off to sleep with out a care in the world…..It sucks though because once I’m discharged they won’t write me a script.

Overall the majority of people in the hospital system are awesome and most will go out of there way to help y,, you come across a few with a bug up there arse who are just out to cause grief..

COMMENT ON YOUR HATES AND LOVES OF HOSPITAL

UPDATE ON HOSPITAL CRUSH: Right now I have a Crush on one of the youngish (28 yrs) resident Doctors… so I better style my hair with Aqium hand gel since the good hair stuff is at home and making myself smell nice with a splash of old IV Tobra cologne can’t be a bad thing, can it lol. Maybe I can ask her on a date and we share a Quality Mystery meat hospital meal………

PeGsOn

pegson1986@homail.com / twitter.com/pegson / facebook.com/arronpegg / youtube.com/pegson123

November 11, 2009 Posted by | All Posts, Daily Rants, Hospital Stays | , , , , | 6 Comments

Hospital Stay Day 9 – Video Blog

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PeGsOn

pegson1986@hotmail.com / twitter.com/pegson

November 10, 2009 Posted by | All Posts, Hospital Stays | , , , , , , , | Leave a comment

Hospital Stay Day 8 – Off the Maxillofacial team, funny coversation, lung update

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BRAND NAME: ULTRA PAINFUL STING WASH

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Ok so first off let me start by saying I’m still in hospital and probably will be for sometime to come, however Today I’m official off the maxillofacial service…

What does this mean?

Well My wisdom teeth surgery is healing nicely and that there is no need for me to be under there service in the hospital..so basically if there wasn’t CF factor I would be sent home tomorrow morning…

So I still have to continue with my Oral mouthwashes that sting like hell, and I’m still not allowed to eat anything that will get stuck in my teeth because that could facilitate infection along with nothing RAW although I’m not one who likes a still galloping and mooing T-Bone..

Something on the funny side and a little X rated so readers beware..One of the registrars who came to discharge me from their service started to list the things I can and can’t do and for how long..I warn you, you won’t believe me but anyhow He said this to me.

DOC: So are you married Arron?

ME: Hahahaha nah I’m not

DOC: Do you have a Girlfriend?

ME: Uhmm no not at the moment, not for a while, been going through an ultra dry patch something close to the Gobi desert (In a joking tone)

DOC: Well are you sexually active?

ME: Lol what?

DOC: Ok so while your teeth are healing your mouth is going to be very susceptible to infections especially from things alien to the mouth.

ME: Alien…….ok (thinks whats my doctor smoking)

DOC: I guess what I’m saying is don’t kiss and refrain from sexual interactions of the Oral kind until you can chew your food with no pain (He is dead serious no grin to ease the akward moment, but I guess being able to chew with no pain means your mouth is healed)

ME: oh…k….so yeah that shouldn’t be a problem..uhmmmm.

DOC: Ok Arron everything seems good, might pop my head in through the week if your here.

ME’ Rightio cya mate.

So yeah I guess it makes sense not go around having oral sex with strange women straight after wisdom teeth surgery, but I thought to myself who does this doctor think I am some kind of sex freak that is so addicted to sex I’m forced to escape the ward and struggle into town with my gown flapping half done up in the breeze for a beer hoping to impress the ladies with the size of my IV Pole…All in order to go nom nom nom nom…pretty funny, well least I thought so…

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PuffinMuffin

On to my Face, its still swollen but no where near the extent as 2 days ago its almost back to normal in that department…The pain has taken on a new wrap with the pain changing from a sharp constant shooting pain to now a dull ache. However still quite painful. I’m currently taking codeine phosphate to ease the pain..It works but not like Panadole..My Skin is looking really battered now the swelling has gone down…When my face was swollen It was like you could see no imperfections, not even little scars because my face was so red and puffy…Now when I look in the mirror I can see bruises starting to form showing what looks like the out line of some kind of facebrace to keep your mouth open during surgery, Tiny little blood blisters where the bruising is more towards the surface rather than deep, A ton of yellow brusing but it can’t be seen in all light, and quite a few pimples & Zits from not being able to properly bath my face for 4 days…So I need some sun and vitamin E cream.

I will just quickly update you on the lungs..

They are still very blocked up with mucus although now my tooth/mouth pain is starting to come under control I am starting to find it a tad easier to clear the mucus…My O2 sats are still not back to where they were 96%, currently my O2 is  sitting at around 93% on room air. As for treatment I’m doing Tobramycin and Ceftazadime via IV and Ciprofloxacin orally..Along with all my over daily meds.

As for how long I will be in here? It”s hard to say considering we are now dealing with a chest infection.  In all Probability two weeks maybe if I’m lucky and responding well 1 week than home on the meds for the final week…so It’s a play by ear situation at the moment….

As for now I’m going to get some sleep.

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PeGsOn

Pegson1986@hotmail.com / twitter.com/pegson

November 9, 2009 Posted by | All Posts, Hospital Stays | , , , , , , , , , | 8 Comments

Hospital Stay Day 7 – Today was a scary day…Oxygen sats were down to 79 %

last night two days after my wisdom teeth surgery my 02 dropped to 79….i was hysterical…the lowest its been before was 88 and I was sick as a dog in the ambulance having a moderate lung bleed that required pulmonary ambolisation.

I’m worried I wont be able to return to what I was before the incident being 48 % FEV1 and 96 % SATS O2 when healthy..

right now my SATS are 92 on room air….

I feel totally gutted. Like I have failed somewhat..

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PeGsOn

pegson1986@hotmail.com

November 8, 2009 Posted by | All Posts, Hospital Stays | , , , | 5 Comments

Hospital Stay Day 6 – Shocking Pain and My Lungs are going down hill fast.

Hey Guys…

I’m seriously buggered just updating the blog…Everything thas happening seems to be contributing to my Lungs going down hill. My Sats hit as low as 87 Percent that’s a new while Conscious low effort…I’m pretty scared because I have worked my arse off…I have a coupe of days to turn this around before serious damage occurs. Which I should be able to do.

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PeGsOn

pegson1986@hotmail.com

November 7, 2009 Posted by | All Posts, Hospital Stays | , , , , , , , | 4 Comments

Hospital stay Day 5 – Pain Pain and More Pain


PeGsOn

pegson1986@hotmail.com

November 6, 2009 Posted by | All Posts, Hospital Stays | , , , | 6 Comments

Video – 30 Minutes after Recovery. Graphic

Note: Just a little warning this video is a slightly graphic. Swollen Face, close up of bloody mouth and blood specks over me…not bad at al..I was drugged out of my mind but I thought I would show real footage even if I embarrass myself. At this stage I felt great compared to what I feel now. I’m in Extreme pain because the Surgery Medication has worn off and my mouth is oozing blood.

Sorry took so long be out of it and still am this has been spell check 3 times lol

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PeGsOn

pegson1986@hotmail.com

November 6, 2009 Posted by | All Posts, Hospital Stays | , , , , | 1 Comment